Events and Campaigns: Highlights from Rare Disease Foundations
There is a glaring unmet need in the field of rare diseases. The absence of knowledge, research, funding, and support…
Read MoreThere is a glaring unmet need in the field of rare diseases. The absence of knowledge, research, funding, and support…
Read MoreLiving with a rare disease has consistently posed significant challenges, as patients often face difficulties in finding appropriate treatments or…
Read MoreThe world of rare diseases is complex and often isolated. With thousands of rare conditions affecting millions globally, rare disease…
Read MoreBased on current reports, nearly 80% of rare diseases are genetic, with approximately 70% appearing in childhood. About 95% of…
Read MoreA standard definition of “rare diseases” has not yet been agreed upon by medical professionals in India. According to the…
Read MoreA bundle of joy was born on January 6, 1975, in India to middle-class parents. Little did they know the…
Read MoreIn the US, a rare disease is defined as a debilitating condition affecting only one in 1,630 people. According to…
Read MoreIn Search of the Right Diagnosis In 2008, one Sunday afternoon, in a city in Andhra Pradesh, Ravi, a three-year-old,…
Read MoreThe pain afflicted by the devastating Farber disease is experienced by the whole family When they first heard his slightly…
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