Our Vision and Mission

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Our Vision

IndoUS Organization for Rare Diseases (IndoUSrare) is a 501(C)(3) tax-exempt non-profit organization focused on accelerating therapies for rare diseases by building collaborative bridges between the USA and the Indian subcontinent for education, advocacy, & research.

Our Mission

  1. Advocate for the inclusion of the Indian subcontinent in global clinical trials and enable access to global trials as an option for patients of Indian origin living with rare diseases.
  2. Connect patients living with rare diseases in India and the USA with patient advocacy groups, research, clinical trials, and international Consortia such as IRDiRC, RDI, Global Genes, NORD, RARE-X, and UDNI.
  3. Collaborate for public health policy development & implementation such as Rare Disease and Orphan Drug Policies between the USA, India, and other countries.
  4. Bring together stakeholders of rare diseases by organizing national and international conferences.
  5. Facilitate cross-border research collaborations for genetic disorders.

 

Our vision