Meet the speaker!
𝐕𝐢𝐞𝐰 𝐟𝐮𝐥𝐥 𝐚𝐠𝐞𝐧𝐝𝐚 𝐚𝐧𝐝 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐡𝐞𝐫𝐞: https://t.co/9TidvsqRQn
@mito_gene
#mitochondrialdisease #leighsyndrome #raredisease #rarediseases #rarediseaseawareness #rarediseaseresearch #mitochondria
#patientadvocacy #patientsfirst https://t.co/2oNZ2docSQ
One of the goals of #WDAD2022 is to support mothers as primary caregivers.
🆘 We are raising awareness on caregiver burnout and encourage mothers to take care of their own needs, too.
#WomenAndDuchenne
https://t.co/gCv3FSsUpx https://t.co/7v1wU2iNMd
Do you need support with genetic counselling? @alexTLCsupport can provide support to those experiencing difficulties sharing a diagnosis with their family. They understand the challenges faced and are there to help proactively develop a plan together: https://t.co/n5cBxjjBV1 https://t.co/h6MxrSfx4Q
@Harsharajasimha https://t.co/RlcrEVRv2C
Rare Revolution Mag
@RareRevolutionM
We are looking to shine a light on RARE entrepreneurs. Are you someone with a rare disease, or someone affected by rare disease who has set up a business in response to an unmet need you have experienced?
More info email :ebishop @rarerevolutionmagazine.com https://t.co/r0nhqLe8Ic
We are looking to shine a light on RARE entrepreneurs. Are you someone with a rare disease, or someone affected by rare disease who has set up a business in response to an unmet need you have experienced?
More info email :ebishop @rarerevolutionmagazine.com https://t.co/r0nhqLe8Ic
@indousrare is a non-profit on a mission to accelerate therapies for rare diseases. We build collaborations between the US, India, and other countries. For more details visit our website https://t.co/nakHHtn6r7
#indousrare #rarediseaseprogram #raredisease #rarediseaseawareness https://t.co/tBs6tLX94J
Attend @GlobalGenes largest hybrid event of the year, Rare Patient Advocacy Summit, 9/12-9/14. Register for the opportunity to connect with others in the #raredisease community and attend #rare educational sessions. https://t.co/3Qi3nh2KR8.
#CareAboutRare #Pas #Pas2022