Feasibility Study-
Patient-Owned Health Data Registries – India Feasibility Study Report
Read the full report here. https://t.co/WvKqYv9nye
#PatientRegistry #patientdatastrategy #EDI #India #HealthData #FeasibilityStudy #raredisease #rarediseaseawareness #indousrare https://t.co/N3vf2nFK38

Undiagnosed Day 2022 - A celebration to all living with an Undiagnosed Disease and their loved ones and in memory of the ones lost
No registration is needed.
Date: April 29th, 2022,
Time: 7.30-10.30 am EDT,
Visit here to Join https://t.co/DScReGfqRD #UndiagnosedDay2022
Read this article https://t.co/xZnBocvgUb by @Harsharajasimha and know about Why Clinical Research Is Probably the Best Option for Most Patients with Rare Diseases
#clinicalresearch #clinicaltrials #medicine #research #clinicaltrial #clinicalstudies #RareDisease #biotech
We are happy to be a partner for the @MosaConference
If you are interested in joining to create new connections then visit their website to stay up to date with the latest information! #onlineconference #webinar #opportunity #conference #RareDisease #biotech #chronicillness https://t.co/aNvBMZvf24

Thank you, Frank J. Sasinowski for your kind words of appreciation. Your support and encouragement inspire us to work towards #buildingbridges for accelerating #rarediseasetreatments
#gratitude #wordsofappreciation
#rarediseases #indousrare #raredisease #rarediseaseawareness https://t.co/1hY4h8cx75
Happy World Health Day. On this World Health Day, we must kill the darkness of ignorance with our knowledge about rare diseases because 400 million people worldwide are living with a rare disease.
#HappyWorldHealthDay #WorldHealthDay #rarediseases #raredisease #indousrare https://t.co/rn8XuEBYOP
