March 20, 2023
Clinical trials and effective treatment protocols rely on comprehensive data on rare disease demographics and treatments. Rare diseases affect hundreds of millions worldwide, but data collection has been haphazard and isolated within individual countries. The U.S.-based humanitarian organization IndoUSrare is leading a corporate alliance, leveraging technology and refining the procedures necessary to help patient groups and sponsors create global patient registries that can accelerate clinical trials, ultimately saving millions of lives….. Read More