We are happy to announce that IndoUSrare is a recipient of the Financial Advocacy in RARE Impact Grant sponsored by GlobalGenes.
IndoUSrare will aim to determine the availability and accessibility of various schemes for financial assistance for rare diseases in India, create educational resources based on the findings, and create awareness of available financial schemes among the rare disease community in India. https://www.businesswire.com/news/home/20220622005364/en/Global-Genes-Awards-2022-Financial-Advocacy-in-Rare-FAIR-Patient-Impact-Grants
GAA FAIR Grant award
- Summer 2021: Rare Revolution Magazine: Diversity, access, and Inclusion: How IndoUSrare is addressing these grand challenges by building collaborative bridges for stakeholders of rare diseases between the western world and the Indian subcontinent: https://edition.pagesuite-professional.co.uk/html5/reader/production/default.aspx?pubname=&edid=dcb17c96-30d4-4549-82b6-3dbd1f0c947a&pnum=54
- Apr 20, 2021: https://rare-x.org/blog/2021/04/20/indoUSrare-and-rare-x-conduct-feasibility-study-for-a-patient-owned-health-data-collection-program-for-india/
- https://timesofindia.indiatimes.com/blogs/voices/unwinding-the-open-data-debate-for-rare-diseases/
- https://rare-x.org/assessing-the-rare-disease-landscape-in-india/
- Rajasimha HK, et al., Organization for Rare Diseases India – Addressing the Challenges and Opportunities for Indian Rare Diseases’ Community; Genetics Research 2014.
- https://biobuzz.io/in-conversation-dr-harsha-k-rajasimha-indoUSrare/
- https://globalgenes.org/2020/02/06/rare-leader-harsha-rajasimha-ceo-indoUSrare/
- https://www.linkedin.com/pulse/announcing-indoUSrare-harsha-k-rajasimha/
- https://www.facebook.com/harshakarur/posts/1015936121709496
- https://www.linkedin.com/pulse/announcing-indoUSrare-harsha-k-rajasimha/
- https://stories.possiabilities.com/social-entrepreneur-on-a-mission-to-bridge-the-clinical-research-divide-between-the-usa-and-india-with-advocacy-and-technology/
