Rare Disease Organization - IndoUSrare's Global Collaboration

OUR IMPACT

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50

Patients Alliance Member Foundations

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500+

Rare diseases represented

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20,000+

Patients connected

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50+

Countries covered

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Hosted 25 global events, Invited 30 speakers at 14 conferences

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Policy inputs to US FDA and Indian Govt on data sharing and diversity.

6

Corporate Partnerships

17

Global Partnerships

Raised $100,000+ through donations and grants

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Global Webinar on “Forgotten & Unseen: A Global Perspective on Life as an X-Linked Carrier”

Join us along with “Remember The Girls”  and  “Child Youth Care Zimbabwe”  for a global webinar on “Forgotten & Unseen: A Global Perspective on Life as an X-Linked Carrier”! Indousrare is excited to have an incredible panel of speakers who will share their experiences and insights on this important topic.
All age groups are welcome to Participate.
Date: Apr 25th, 2023
Time: 10:00 AM EST / 4:00 PM CAT / 7:30 PM IST
Registration: https://bit.ly/xlinkedcarrierglobalwebinar

The banner image of the Global Perspective On Life as a X-Linked Carrier Panelists.
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