Participate in our online survey

Participate in our online survey

BETWEEN NOW AND MARCH 31ST 2023

IndoUSrare is partnering with Ginkgo Leaf Rare Disease Family Care Center and Engage Health, Inc. to better understand the motivators and deterrents for rare disease patients and their caregivers when considering participation in a clinical trial. 

The knowledge learned from this project will be used to educate pharmaceutical companies about what factors are most important to consider when recruiting for a clinical trial.


Visit https://tinyurl.com/indousrare to take this short survey!

The goal of Engage Health (a rare disease research health firm), IndoUSrare (a non-profit organization devoted on advancing the diagnosis and treatment of rare diseases) and Ginkgo Leaf Rare Disease Family Care Center (a non-profit organization supporting patients with rare diseases in China) is to better understand the drivers and inhibitors of clinical trial participation for people with rare diseases and the people who care for them.

To take this short survey, click https://tinyurl.com/indousrare

#indousrare #engagehealth #ginkgo #rarediseases #clinicaltrials

IndoUSrare is partnering with Ginkgo Leaf Rare Disease Family Care Center and Engage Health, Inc. to better understand the motivators and deterrents for rare disease patients and their caregivers when considering participation in a clinical trial. This survey is intended for patients or caregivers who live in India or are of Indian descent.
The knowledge learned from this project will be used to educate pharmaceutical companies about what factors are most important to consider when recruiting for a clinical trial.
To take this short survey, click https://tinyurl.com/indousrare
#indousrare #engagehealth #ginkgoleafrarediseasefamily #rarediseases #clinicaltrials #raredisease #caregiver