Each time a visitor comes to our website, we collect some basic technical information. We use external software (Google Analytics) to keep track of traffic to our site and acquire such information as the location from which the traffic originates and which particular pages within the website are being viewed and for how long. We will be able to see that we had ‘X’ number of hits and ‘Y’ individual visitors to our site today, but we do not know their names, addresses, or other personal information.
Disclosure of Information
Please note that we may disclose information about you:
- if we are required to do so by law,
- to law enforcement authorities or other government officials based on a lawful disclosure request,
- when we believe disclosure is necessary or appropriate to prevent physical harm or financial loss, or in connection with an investigation of suspected or actual fraudulent or illegal activity,
- when you authorize us to.
Please note that we reserve the right to transfer any information we have about you in the event we merge or transfer all or a portion of our organization or assets (including in the event of a reorganization or dissolution).
This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. Our computers and those of our hosting company are protected by passwords, firewalls, and other security.
You are responsible for maintaining the confidentiality of any username, passwords, and other account details, and are fully responsible for all activities that occur in your account. Please remember that you should not share your password with anyone. If you are using a public or shared computer, ensure extreme caution so that others are not able to view or record your password or your other information.
Please be aware that while we do our best to protect your information, we cannot fully guarantee that information may not be accessed, disclosed, altered, or destroyed by a possible breach of our safeguards. Please understand that the transmission of information via the internet is not completely secure. In this regard, any information you provide is at your own risk. You agree that IndoUSrare is not liable for the unauthorized release of your information.
Children’s Online Privacy Protection Act (COPPA)
Our website and services offered do not specifically cater to children and we do not market our services to children under the age of 13 years. As such, we comply with all applicable Children’s Online Privacy Protection Act (COPPA) requirements as per the United States Federal Trade Commission which puts parents in control of their child’s data.
Security of credit card/transaction information
Our website uses SSL (Secure Sockets Layer) to communicate with your browser software when you make a transaction on our website and thereby provide us with your credit card or similar information. SSL is the industry-standard security protocol, which makes it extremely difficult for anyone else to intercept your credit card/transaction details and any other information that you send us when you make payment. We take precautions to safeguard your credit card data in our internal systems.
Our site uses a contact form for visitors to request information, and services. We collect contact information (like e-mail address), and financial information (like account or credit card numbers). Contact information may be used to send information about our organization or to get in touch with the visitor when necessary.
The IndoUSrare Newsletter is a periodic e-mail service that aims to keep subscribers updated with the latest news at IndoUSrare and the broader rare disease community. You have the option to unsubscribe from these newsletters at any point. Please note that we use the services of a third-party service provider, MailChimp, to provide this service.
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you may contact us here.