About Us

About IndoUSrare

IndoUSrare is a humanitarian non-profit 501(C)(3) tax-exempt public charity organization based in the US, which addresses the unmet needs of diverse patients with rare diseases globally. With an initial focus on the Indian diaspora, their goal is to build cross-border collaborations to connect stakeholders of rare diseases in low- and middle-income regions—such as India—with their counterparts and clinical researchers in the US. This would allow to improve the diversity of clinical trial participants, accelerate research and development, and improve equitable access to life-saving therapies to diverse populations of rare disease patients.

Our Vision

Indo-US Organization for Rare Diseases (IndoUSrare) is a 501(C)(3) tax-exempt non-profit organization focused on accelerating therapies for rare diseases by building collaborative bridges between the USA and the Indian subcontinent for education, advocacy, & research.


Why is this important?

We believe bridging the eastern and western silos will be a critical catalyst in accelerating the next generation of therapies for rare and complex genetic diseases. Our mission is to educate, empower, and advocate for patients with rare diseases in the US, India, and globally by fostering collaborations & filling critical gaps for the rare disease community towards accelerating diagnostics and therapies.

  • 97% of drug discovery and development happens outside of the Indian subcontinent.
  • ~23% of the World’s population lives in the Indian subcontinent.
  • Patient identification and recruitment into clinical trials is the biggest barrier in the development of therapies.
  • A majority of the FDA or EMA approved drugs are not commercialized in the low- and middle- income regions such as the Indian subcontinent.
  • Most of the large-scale long-term investments leading to the discovery and development of novel therapies happen in the Western World.
  • Recent trends indicate that most of the “low-hanging fruits” for novel drugs have been exhausted and novel therapies for rare diseases will require innovative solutions outside the traditional process.
  • Most of the biomedical and clinical research databases are filled with predominantly data of Caucasian origin. This needs to be updated with data from the genetically diverse population from the Indian Subcontinent.
  • Progress in the 21st century will require global cooperation with a particular emphasis on the Indian subcontinent.

Our History

Founded in 2019 with a group of community leaders with a long history of serving the rare disease community in different capacities. The group saw the need for global cooperation between the East and the West as a driver of new therapies of the 21st century. Orphan Drugs are largely funded by and developed in the Western world by engaging only 10% of the world’s population. Once approved by the FDA, these treatments are sought by patients globally who may not be able to access or benefit from the drugs designed without being tested on diverse patients representative of the World’s population. 

We saw the need for building collaborative bridges of hope between the Eastern and Western worlds to accelerate discovery and development of novel diagnostics and therapeutics for the global rare disease community.

Board Of Directors


Sundeep Agrawal



Reena Kartha

M.S., Ph.D.

Harsha K. Rajasimha

Harsha K. Rajasimha

M.S., Ph.D.

Narayanan Govindarajan

Nara Govindarajan



Charles Andres

Ph.D., RAC

Frank J. Sasinowski

Frank J. Sasinowski

M.S., M.P.H., J.D.

Our Advisory Board Members

Rajesh Gooty

President, Lead America Inc., Washington DC

Stephen Groft, Pharm.D.

Board Director, ICORD,
Retired Director, NIH Bethesda, MD

Akkaraju Sarma, MD, Ph.D., FAAFP

Ellis Island Medal of Honor 2016 Recipient, Pennsylvania Resident

Core Management Team


Nisha Venugopal


Our Volunteers

Arockia Jayaraj, Ph.D.

Post Doctoral Research Scholar, Dallas area

Shashi Nadig

Director of community engagement, Greenville, SC

Siddhee Sahasrabudhe

PhD student in Experimental and Clinical Pharmacology at University of Minnesota

Srinivas Seshadri and Rekha Narayan

Directors of Roarforrare, SF Bay area

Our Partners

Global Rare Deep GRIDCouncil angel udni GARD RDDC PAFLogo Impact Guru CDFV Anuvansha

We are supported by

Takeda ultra Amicus
1v1.lol unblocked google sites unblocked bit life unblocked slope unblocked yohoho unblocked io games unblocked drive mad unblocked 1v1.lol unblocked io games krunker.io 1v1.lol
melbet megapari 1win giriş melbet giriş melbet giriş melbet melbet giriş onbahis giriş megapari
Kilit taşı fiyatları Kilit taşı Parke taşı Parke taşı fiyatları
Kilit taşı fiyatları Kilit taşı Parke taşı Parke taşı fiyatları
Akücü akumyolda.com akücü akümyoldaİnci akü 60 amper inci akü 60 amper akumyolda.comAkü yol yardım olarak akü takviye ve değişimi hzmetleri sunuyoruz. akü yol yardım İngilizce Türkçe çeviri ingilizceturkce.gen.tr ile ingilizce türkçe çeviriAlçalan burç hesaplama sitesi hesaparaclari.com hesaparaclari.comTranslate to English with translatedict.com TranslateDictTranslate Spanish to English audio with spanishenglish.comTranslate Spanish to English audio with spanishenglish.comCalculatorcafe helps to calculate loans as a loan calculator.Calculatorcafe.com
bahis10bets.com betvole1.com casinomaxi-giris.com interbahis-giris1.com klasbahis1.com mobilbahisguncelgiris1.com piabetgiris1.com tipobettgiris.com tumbetgiris1.com betboro 1xbet giriş
escort bursa escort gorukle
İngilizce Türkçe çeviri siteleri kullanıcıların metinleri veya belgeleri yükleyerek anında tercüme yapmalarını sağlayan platformlardır Genellikle temel çeviri ihtiyaçlarını karşılamak için kullanılır ve geniş bir kullanıcı kitlesine hizmet verir. Ancak, tam anlamıyla doğru ve dilbilgisine uygun çeviriler için profesyonel çeviri hizmetlerine başvurmak daha güvenilir olabilir. Bu siteler, hızlı ve pratik bir çözüm sunarken, özellikle hassas veya teknik metinlerin çevirisinde profesyonel bir çevirmenin becerileri ve deneyimi gerekebilir.ingilizceturkce.gen.tr
Spanish to English translation involves accurately conveying not only the words but also the meaning, tone, and cultural nuances of the original text. Skilled translators proficient in both Spanish and English are essential to ensure accurate and effective translations. They must have a deep understanding of both languages' grammar, vocabulary, and idiomatic expressions to deliver high-quality translations. Spanish to English translation is widely used in various fields, including business, literature, media, and international communication. It plays a vital role in enabling cross-cultural understanding and facilitating global interactions.spanishenglish.net