Webinar Series

IndoUSrare Webinar: Caring for Caregivers

COVID-19 Vaccine Safety for Rare Disease Patients - Ask the Experts

Clinical Trials: The Hope to Cure Rare Diseases

Finding Commonalities in Rare Diseases: The Indian Scenario

Dr. Jayesh Sheth, Ph.D., FICMHH

Chairman of the Foundation for Research In Genetics and Endocrinology (FRIGE) – Institute of Human Genetics, India

Rare Disease Patient Engagement with FDA: Setting the Context for Regulatory Decision-Making

James Valentine JD MHS

Attorney at Hyman, Phelps & McNamara

2019 RARE Champion of Hope

Inaugural Webinar: The Rare Journey, It’s What Unites Us

Nicole Boice 

Co-Founder, Rare-X

Founder, Global Genes