A Unique Girl in her Unique World

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Social Media is Amplifying the Voices of Rare Disease Advocates

Social Media is Amplifying the Voices of Rare Disease Advocates

Living with a rare disease has consistently posed significant challenges,...

Educational Webinars How They Educate and Empower the Rare Disease Community

Educational Webinars: How They Educate and Empower the Rare Disease Community

The world of rare diseases is complex and often isolated....