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Homepage Roar4Rare
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Roar4Rare

May 4, 2021
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IndoUSrare is partnering with the India Association of Greenville (IAG), to organize a Health Initiative Month with the aim of raising awareness for rare diseases and to make the Greenville community fit and healthy.

The month-long virtual initiative will begin on 10th April 2021 and end on 16th May 2021 with an in-person event where all registered participants come together for the 5K Run.

Date: 16 May 2021

Time: 7:30 am – report to the Registration desk, 8:30 am Run begins

Venue: Greer City Park, 301 E Poinsett St, Greer, SC 29651

We encourage the Greenville community to participate. Community members of all age groups – adults and children alike are encouraged to participate. Children below the age of 16 years have to be accompanied by an adult and can register using an Add-On ticket.

How can you participate?

STEP 1: Register for Roar4Rare Health Initiative Month. You can register on behalf of your kid(s) as an add-on ticket to your own.

STEP 2: All registered participants come together for the Final Day 5K Run on Sunday, 16th May 2021, at Greer City Park, SC. You can run, jog or walk the distance.

STEP 3: Post your photos and screenshots on social media and tag @indousrare and @myiag in your run photos with the hashtag #ROAR4RARE

This summer, let’s put on our running shoes and get moving to get fit and raise awareness and support for the 7000+ rare diseases that affect over 350 million people globally.

Runners will be given a memento at the end of the event.

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MS. KANAN LATHI

Kanan Lathia is an Ambassador and scientific consultant at Indousrare.She has spent 20+ years as a research scientist focusing on neurodegenerative diseases, cancer, and HIV. She has also worked as a project manager supporting teams in building brain maps of the first 1000 days of babies. Kanan’s passion for rare diseases is driven by a personal cause. Her work with Dup15q Alliance strengthened her passion for giving back to rare disease families. Kanan hopes to scale the organization’s efforts by securing funding and building a patient alliance membership program. Kanan loves yoga and spending time between the US and India.

 Dr. Krishna Ramaswamy

Dr. Krishna Ramaswamy is a life science professional with experience in research, management consulting, and business development in academia and industry. She has a Ph.D. in Biological Sciences from University at Buffalo, SUNY, and pursued postdoctoral research in cell biology from the University of Southern California, Los Angeles. She has worked as a consultant for the biotech/pharma industry and worked with Dr. Harsha and ORDI in the past for about 2 years. Dr. Krishna currently resides in Hyderabad India and has a keen interest in the rare diseases space and would like to bring awareness about the various diseases, diagnoses and treatments that are available and those in the pipeline. She first began working in the rare disease space during her postdoctoral training and has worked on peroxisome biogenesis disorders under the guidance of Dr. Joe Hacia at USC.

Ms. Neeraja

Neeraja is in her junior year of high school, studying at a School in Gurgaon, India. She has completed all 8 grades in a set of vocal examinations conducted by Trinity College as the captain of the Student Council in her school, currently serving the post of House Captain. Neeraja aims to find solutions to the problems associated with the fields of healthcare, technology, and sustainable development. She is passionate about teenage welfare and has founded a youth-centric organization called ‘Discover Yourself’ through which she aims to inspire, and collaborate with young people across the world and wants to bring awareness regarding various teenage and adolescent issues

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