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Homepage IndoUSrare Annual Conference
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  • « Roar4Rare
  • IndoUSrare Annual Conference – Advocacy Day »

IndoUSrare Annual Conference

October 22, 2021
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Join us for the Inaugural Indo US RARE Annual Conference, a fully virtual event spanning 4 days (2.5 hours each day Nov 29 – Dec 02) from 10am to 12:30pm EST.

The Conference is a live event comprising an exciting line up of webinar style talks and panel discussions, with interactive Q&A and daily open networking sessions.

  • Nov 29th 2021, 10am EST – Advocacy Day Patient led legislative advocacy at national and international levels
  • Nov 30th 2021, 10am EST – Research Day Patient led research programs and initiatives
  • Dec 1st 2021, 10am EST – Patients Alliance Day Programs for patient support, awareness, and education
  • Dec 2nd 2021, 10am EST – Industry Day: Patient advocacy in industry
  • Dec 2nd 2021, 11am EST – Fireside Chat with Frank Sasinowski MS, MPH, JD, a legend in the field of rare diseases

There will be an open networking session after each event.

Use Promo Code INDOUSRARE2021 to get $50 off on registration

Detailed Agenda available for download here

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Copyright ©2022 Indo US Organization for Rare Diseases. All rights reserved. IndoUSrare is a registered 501(c)(3) charity organization.
MS. KANAN LATHI

Kanan Lathia is an Ambassador and scientific consultant at Indousrare.She has spent 20+ years as a research scientist focusing on neurodegenerative diseases, cancer, and HIV. She has also worked as a project manager supporting teams in building brain maps of the first 1000 days of babies. Kanan’s passion for rare diseases is driven by a personal cause. Her work with Dup15q Alliance strengthened her passion for giving back to rare disease families. Kanan hopes to scale the organization’s efforts by securing funding and building a patient alliance membership program. Kanan loves yoga and spending time between the US and India.

 Dr. Krishna Ramaswamy

Dr. Krishna Ramaswamy is a life science professional with experience in research, management consulting, and business development in academia and industry. She has a Ph.D. in Biological Sciences from University at Buffalo, SUNY, and pursued postdoctoral research in cell biology from the University of Southern California, Los Angeles. She has worked as a consultant for the biotech/pharma industry and worked with Dr. Harsha and ORDI in the past for about 2 years. Dr. Krishna currently resides in Hyderabad India and has a keen interest in the rare diseases space and would like to bring awareness about the various diseases, diagnoses and treatments that are available and those in the pipeline. She first began working in the rare disease space during her postdoctoral training and has worked on peroxisome biogenesis disorders under the guidance of Dr. Joe Hacia at USC.

Ms. Neeraja

Neeraja is in her junior year of high school, studying at a School in Gurgaon, India. She has completed all 8 grades in a set of vocal examinations conducted by Trinity College as the captain of the Student Council in her school, currently serving the post of House Captain. Neeraja aims to find solutions to the problems associated with the fields of healthcare, technology, and sustainable development. She is passionate about teenage welfare and has founded a youth-centric organization called ‘Discover Yourself’ through which she aims to inspire, and collaborate with young people across the world and wants to bring awareness regarding various teenage and adolescent issues

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