Newborn Screening – The Indian Perspective

IndoUSrare Webinar

2022 RARE Patient Advocacy Summit

Rare Life. Bonded Together

September 12-14, 2022

Diego, CA (and virtually!)

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We are excited to present to you, Newborn Screening- The Indian Perspective, by  Dr. A Radha Rama Devi and Dr. Arun K Singh The aim of the webinar is to raise awareness and address concerns regarding New born screening.

Newborn screening (NBS) is now a well-recognized public health program in many parts of the world and even mandatory in certain countries. However, in India, which is the largest populous country next to only to China, NBS is still not a priority to be implemented for the welfare of people due to a number of reasons mainly the lack of political will. In such a scenario, how best the fruits of screening can be passed on to the public to benefit at least those with suspected inborn error.

This webinar will be hosted by Dr. Reena Kartha, Board Director of Research Programs at IndoUSrare

Meet the Speakers:

Dr. Radha Rama Devi is a pediatrician and clinical researcher with 42 years of experience in medical education. She is the President of the Indian Society of Inborn Errors of Metabolism. She has 90 publications in national and international journals. She has won numerous awards including the President’s Medal in MBBS, Gold Medal in medicine, Senior Women Bio Scientist Award from the Department of Biotechnology (GOI)in 2005, Dr. I.C.Verma Outstanding Researcher Award in 2018, and a Life time Achievement award in Inborn errors of Metabolism by the Hyderabad branch of Indian Academy of Pediatrics. She was listed as one among the Top 10 women in Medicine in 2007. She started large scale newborn screening in India and has promoted the importance and awareness of Inborn Errors of Metabolism and management.

Dr. Arun K Singh is the Head of Department of Neonatology at All India Institute of Medical Sciences (AIIMS) Jodhpur and the National Advisor, RBSK (Rastriya Bal Swasthya Karyakram) (National child Health Program) under Ministry of Health, Government of India. In this role, he conceived the program for all children of the country from birth to 18 years for universal screening and management, developed and wrote the training manual for screening by basic health personals, and has helped in implementing RBSK in all the states of the country.