IndoUSrare Patient Contact Form

Thank you for your interest in seeking information assistance from IndoUSrare. Please provide the following information to help us understand your current situation.

First Name *

Last Name *

Your Email address*
An email address where we can contact you at. We will not share your contact info with anyone.

Phone number *
Please enter your phone number with area code, if applicable. We will not share your contact info with anyone.

Location *
City / State where you live

Your physician / hospital *
Name of physician & hospital are you current seeking treatments for this disease. Include city/state of the hospital

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IndoUSrare Patient Contact Form

About the disease

Tell us about the disease to help us understand patients better. Enter N/A if you don't know answers to any question.

Name of the disease *

Genetic details of disease (optional)

Mention the name of the gene involved, any other genetic/scientific details as much as you know

Symptoms (optional)

History of diagnosis (optional)

How are patients generally diagnosed? How many months/years into life do they get the diagnosis? Any other information pertaining to diagnosis.

Current Treatments (optional)

How are patients treated for this disease today? Include allopathic medicines, aryurvedic medicines, home remedies, and other activities to manage symptoms commonly used by patients

Prospective Treatments (optional)

Describe any prospective treatments being developed for this disease. Include their development status, trials status, country where it is currently being developed etc

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IndoUSrare Patient Contact Form

Your Needs

Explain your expectation from therapy, IndoUSrare and the rare disease community at large

Describe your treatment needs

Describe your needs from a prospective treatment.

How can IndoUSrare help you?

Briefly explain your expectation from IndoUSrare. It will help us align our services to your requriements.

Notes (if any)

Please note that by submitting this form, you consent to IndoUSrare sharing the information provided by you, with our trusted network of partners.

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