Nicole Boice
Nicole Boice
Founder RARE-X
April 20, 2022
Nicole Boice
We were honored to collaborate with IndoUSrare conducting a feasibility study addressing the need for patient-owned data collection programs in India and what is needed to support this type of initiative. Our report was published in April 2021. Now, we are announcing our expanded support of patient-centered data collection and international data governance for patient-owned and stewarded data supporting patients/patient advocates of Indian descent