Post Slider 1
Why Patient Advocacy Organizations are Essential to Families Coping with Rare Diseases
In the US, a rare disease is defined as a debilitating condition affecting only one in 1,630 people. According to…
Read More Political Squabbles Slow Drug Development for Rare Diseases
“The current process for developing new treatments for rare diseases leaves India and the Indian diaspora on the outside looking…
Read More Millions Suffer From Untreatable Rare Diseases While Medical Costs Skyrocket
New studies highlight the devastating economic burden of rare diseases. Impacting about 30 million people in the United States alone, the direct…
Read More Families In India Face Ongoing Challenges When Coping With Rare Diseases
New studies highlight the devastating economic burden of rare diseases. Impacting about 30 million people in the United States alone, the direct…
Read More Post Slider 2
