The Aarskog Foundation
ALD Connect, Inc.
The APS Type 1 Foundation Inc.
Cure VCP Disease, Inc.
CSNK2A1 Foundation
Defeat MSA Alliance
Ehlers-Danlos Society
Families of Spinal Muscular Atrophy India
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Indian Rett Syndrome Foundation
MEPAN Foundation
Neuromuscular Disease Foundation
Parent Project Muscular Dystrophy
Rare Autoinflammatory Conditions’ Community- UK (RACC-UK)
Remember The Girls
Team Telomere
The Snyder-Robinson Foundation
Wishes for Elliott : Advancing SCN8A Research
International Pemphigus & Pemphigoid Foundation
Lighting and Love Foundation
Lysosomal Storage Disorders Supports Society
STXBP1 Disorders
21 Century Dads Foundation
National Ataxia Foundation
IGA Nephropathy Foundation
Cure Mito
MND Trust
To apply for a membership, you can complete the application form at the below location