Members - IndoUSrare

Members

Patient Alliance Members List 2022

The Aarskog Foundation

ALD Connect, Inc.

The APS Type 1 Foundation Inc.

Cure VCP Disease, Inc.

CSNK2A1 Foundation

Defeat MSA Alliance

Ehlers-Danlos Society

Families of Spinal Muscular Atrophy India

Indian Patients Society for Primary Immunodeficiency (IPSPI)

Indian Rett Syndrome Foundation

MEPAN Foundation

Neuromuscular Disease Foundation

Parent Project Muscular Dystrophy

Rare Autoinflammatory Conditions’ Community- UK (RACC-UK)

Remember The Girls

The Snyder-Robinson Foundation

Wishes for Elliott : Advancing SCN8A Research

International Pemphigus & Pemphigoid Foundation

Lighting and Love Foundation

Lysosomal Storage Disorders Supports Society

STXBP1 Disorders

21 Century Dads Foundation

National Ataxia Foundation

IGA Nephropathy Foundation

Patients Alliance Membership Application

To apply for a membership, you can complete the application form at the below location

MEMBERSHIP APPLICATION

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