OUR IMPACT
21
Patients alliance member foundations
500+
Rare diseases represented
15,000+
Patients connected
50+
Countries covered
Hosted 14 global events, Invited speaker at 8 conferences
Policy inputs to US FDA and Indian Govt on data sharing and diversity.
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@indousrare is excited to share that Dr. @Harsharajasimha is participating in the #RAREisRepresentation Panel to share what representation and diversity in the rare disease and Indo-US rare community means to him.
Join the conversation on Thursday, Dec 14 at 1 pm (ET)/12 pm (CT) https://t.co/ldmfkhzP1x
@indousrare announces #SCIENCE4RARE2023, an annual Worldwide Science contest.
Calling on all curious minds of all age groups to show off their talents to raise awareness about Rare Diseases, and a chance to win great prizes.
Contest Details, click 👉 https://t.co/xml6xEWLSF https://t.co/yiNAbgWLFQ
@indousrare announces #ART4RARE2023, an annual rare art contest for all age groups, inviting artists from all over the world to showcase their skills in order to raise awareness about rare diseases and compete for amazing cash prizes.
To Register, click 👉 https://t.co/S1hh0Pwq1g https://t.co/2ppnlpFF3D
The philosophy behind IDPD and the theme for the day this year align perfectly with the vision and mission for @indousrare, which is to bring awareness about rare diseases and the disabilities associated with them across the globe.
#indousrare #IDPD2022 #RareDiseases https://t.co/3ZMe0eMN9e
Most cancer patients never have the opportunity to participate in a clinical trial that could save their life. @Jeevatrials Dr. Harsha Rajasimha is on a mission to change that. Click link to learn more
https://t.co/cFzIo4wq4d
Thanks for featuring our perspective and mission for #Cancer #rarediseases. @Jeevatrials @VirginiaIPC @ACRPDC @MySCRS @ASCO @ASCOPost @AACR @NCICancerTrials https://t.co/RBn9WZTU5d