OUR IMPACT
21
Patients alliance member foundations
500+
Rare diseases represented
15,000+
Patients connected
50+
Countries covered
Hosted 14 global events, Invited speaker at 8 conferences
Policy inputs to US FDA and Indian Govt on data sharing and diversity.
HELP OUR CAUSE
AMOUNT TO DONATE
All donations are tax deductable
There are no upcoming events to display!
There are no upcoming events to display!
@anshulkundaje The Human Frontier Science Program https://t.co/R6fQa2q762 offers both postdoctoral fellowships and research grants specifically for novel/interdisciplinary research, aimed at life sciences research questions
The interview of our partners Jeeva Informatics Solutions and IndoUSrare is published in the May 2022 issue of Neonatology Today (which brings forth peer reviewed research, news and information in Neonatal and Perinatal Medicine). https://t.co/FWhSy9cTSh
Congrats to the #winners of the 2022 Financial Advocacy in #RARE Patient Impact Grant! @PWSAUSA @TeamTelomereInc @aafcsisc @DreamsiCkleKids @indousrare @aiims_newdelhi @StopSarcoidosis @FDysplasia @thegfpd
Read more here https://t.co/OfcbX47uEz
#raredisease
LIVE!
Join Now to Listen Special Talk from Key Opinion Leader
Ms. Indu Navar - CEO and Founder, EverythingALS
Join Webinar by click on this zoom Link: https://t.co/99IZKGwMwq
#onlinewebinar #onlineevent #motorneurondisease #raredisease #rarediseaseawareness #indousrare https://t.co/XfTKQJIlcF
