OUR IMPACT
21
Patients alliance member foundations
500+
Rare diseases represented
15,000+
Patients connected
50+
Countries covered
Hosted 14 global events, Invited speaker at 8 conferences
Policy inputs to US FDA and Indian Govt on data sharing and diversity.
HELP OUR CAUSE
AMOUNT TO DONATE
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Nathan Peck, CEO of Cure VCP Disease, Inc, an Indousrare Patient Alliance Member speaks about his experience with us. Visit here https://t.co/JsxF9gCLW2 to know more about our Patient Alliance Membership Program. #indousrare #rarediseaseawareness #raredisease #membership https://t.co/0QUUt7EroL
Participating in a #clinicaltrial is the best thing that can happen to a patient with a #raredisease. Learn more at https://t.co/y7Eex6RWBe and submit a request form for more information. #rarediseaseawareness #RAREDISEASERESEARCH #rarediseases #clinicalresearch #indousrare https://t.co/H5WI6oMYGb
Through our Patients Alliance Membership program, we are connecting stakeholders of rare diseases in India and across the Globe. Get more details from here https://t.co/JsxF9gCLW2 #indousrare #raredisease #rarediseasewarrior #rarediseaseawareness #RAREDISEASERESEARCH #patient https://t.co/GlxD2etduo
@indousrare is delighted to be at #WODC2021 this week. Inviting all to connect with our Founder Chairman, Harsha Karur Rajasimha to learn more about our work and to discuss ways you can work with us.
#indousrare #rarediseases #patientperspective #india #research #patientalliances https://t.co/8ysHvX1mET
Happy to announce our new partner @thegridcouncil. Now, @indousrare and @thegridcouncil are collaborating to advance research on the epidemiology of rare diseases. #rarediseases #rarediseaseadvocate #research #RAREDISEASERESEARCH #epidemiology #indousrare #thegridcouncil https://t.co/XniyJe91I6
Today India celebrates its 75th Independence Day. Wish you all a very Happy Independence Day ! #IndependenceDay #indiaindependence #indianindependenceday #IndiaIndependenceDay #75thindependenceday #HappyIndependenceDay #india #indousrare https://t.co/AAPmoXXC69
