IndoUSrare
  • Search
  • Login
  • Menu Canvas
    • About Us
      • Financials
      • Meet The Team
      • Message from founder
      • Our History
      • Our Vision and Mission
      • Partners And Supporters
    • Programs
      • Advocacy at IndoUsrare
      • Patients Alliance
        • Program Information
        • Apply for Membership
        • Members list
      • Research Programs
        • IndoUsrare prevalence and Incidence study
        • IndoUSrare Research corps
        • RARE-X
      • ROAR4RARE
      • Webinar Series
    • Events
      • Events Calendar
      • Art4rare
      • Science4Rare
      • Rare Disease Day
      • Indo US Bridging RARE Summit
    • Contact Us
    • Resources
      • Blogs
      • IndoUSrare on social media
      • News/Media
      • Newsletter
    • Patients and Patient Families
      • Events
      • Patient Contact Form
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare on the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Patient Organizations
      • Events
      • My account
      • Patients alliance program
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare in the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Supporters
      • Corporate Alliance Program
      • Join our research corps
      • volunteer With Us
      • Donate
      • Events
  • About Us
    • Our Vision and Mission
    • Meet The Team
    • Message from Founder
    • Our History
    • Partners And Supporters
    • Financials
  • Programs
    • Advocacy
    • Corporate Alliance
    • Patient Concierge
    • Patients Alliance
      • Program Information
      • Apply for Membership
      • Members List
    • Research Programs
      • Prevalence and Incidence Study
      • Our Research Corps
      • RARE-X
      • Awareness
      • International Perceptions of Clinical Trial Participation
    • Webinar Series
  • Events
    • Events Calendar
    • Art4rare
    • Science4Rare
    • Rare Disease Day
    • Indo US Bridging RARE Summit
  • Resources
    • Blogs
    • News/Media
    • Our Newsletters
    • Social media
    • Financial Advocacy
  • Contact Us
  • Donate

    Help Our Cause

    $
    Select Payment Method
    Personal Info

    Donation Total: $20

  • Search
  • Login
    • Logout
IndoUSrare
  • Indo USOrganization for Rare Diseases
  • Patients and Patient Families
    • Events
    • Patient Contact Form
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Patient Organizations
    • Events
    • Login
    • Patients Alliance Program
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Supporters
    • Corporate Alliance Program
    • Join our Research Corps
    • Volunteer with Us
    • Donate
    • Events

OUR IMPACT

21

Patients alliance member foundations

500+

Rare diseases represented

15,000+

Patients connected

50+

Countries covered

Hosted 14 global events, Invited speaker at 8 conferences

Policy inputs to US FDA and Indian Govt on data sharing and diversity.

HELP OUR CAUSE

AMOUNT TO DONATE

All donations are tax deductable

$
Select Payment Method
Personal Info

Donation Total: $20

Indo US Bridging RARE Summit 2023

Arlington, VA GMU campus
DC, WA United States
, 29 Oct 2023 04:00
  • Events
  • Conference

Events

There are no upcoming events to display!

Conference

There are no upcoming events to display!

Subscribe to our newsletters

Tweets 1,764
Following 1,337
Followers 718
Likes 3,823
IndoUSrare
IndoUSrare @indousrare

The @indousrare Corporate Alliance is composed of Biopharmaceuticals, Medical Device Companies, Clinical Research Organizations, & other Life Science Organizations which is committed to bridge the gap for equitable and affordable access.

For more, visit👉 https://t.co/OXzIKoliZ3 https://t.co/FSMmlQQirx
View on Twitter
indousrare photo
3
3
Impact Guru
IndoUSrare Retweeted · Impact Guru @ImpactGuru

My Aryan is screaming in pain every waking moment because the swelling from the cancer is growing rapidly. He can’t play with his friend, he can’t walk, he can’t even move from his bed. Kindly come to his aid.

Donate now: https://t.co/PKfe916QLe

#Fundraising https://t.co/E3NqvFuMOT
View on Twitter
indousrare photo
2
0
NORD
IndoUSrare Retweeted · NORD @RareDiseases

. @StopSarcoidosis is proud to announce their Inaugural #Sarcoidosis Crystal Awards Gala: Celebrating Connections, Collaboration, and Catalyzing Research on May 24, 2023. Early Bird ticket pricing is available until April 15! Learn more and register here: https://t.co/FIzJdU9nw0
View on Twitter
2
0
Impact Guru
IndoUSrare Retweeted · Impact Guru @ImpactGuru

Choose to be a pillar for the ones who are suffering.

Hanumanthi: https://t.co/ljZOImSmfC
Aryan Gowda: https://t.co/K3PvmlsNi9
Ashamolla Pavan: https://t.co/4qbrhHIla8
Ranita Banerjee: https://t.co/Ha7KYTkSUw

#Milestone https://t.co/9L60CKVJMs
View on Twitter
indousrare photo
1
0
NORD
IndoUSrare Retweeted · NORD @RareDiseases

April is #AdrenalDiseases Awareness Month! #AADAM 2023

See @NADF_Adrenal's April Calendar of Events for interactive and educational events here: https://t.co/Wjh5YNCNL4 #NADFadrenal
View on Twitter
1
0
Engage Health Inc.
IndoUSrare Retweeted · Engage Health Inc. @EngageHealthInc

Three brian tumors didn't stop Angel Lauren Wall from graduating! Angel explains the realities of what it is like to live with #Neurofibromatosis type II. Be inspired by her determination!

Read the full article: https://t.co/GM6Vn5sKvk

@nfnetwork @nfontario https://t.co/qhTu1n4gjw
View on Twitter
indousrare photo
2
0
  • Patients and Families
  • Supporters
  • Patient Organizations
  • About Us
  • Programs
  • Events
  • Contact Us
  • Resources
Signup For Our Newsletter

Connect With Us

  • SITEMAP
  • WEBSITE CREDITS
  • PRIVACY
  • DISCLAIMER
Copyright ©2022 Indo US Organization for Rare Diseases. All rights reserved. IndoUSrare is a registered 501(c)(3) charity organization.
MS. KANAN LATHI

Kanan Lathia is an Ambassador and scientific consultant at Indousrare.She has spent 20+ years as a research scientist focusing on neurodegenerative diseases, cancer, and HIV. She has also worked as a project manager supporting teams in building brain maps of the first 1000 days of babies. Kanan’s passion for rare diseases is driven by a personal cause. Her work with Dup15q Alliance strengthened her passion for giving back to rare disease families. Kanan hopes to scale the organization’s efforts by securing funding and building a patient alliance membership program. Kanan loves yoga and spending time between the US and India.

 Dr. Krishna Ramaswamy

Dr. Krishna Ramaswamy is a life science professional with experience in research, management consulting, and business development in academia and industry. She has a Ph.D. in Biological Sciences from University at Buffalo, SUNY, and pursued postdoctoral research in cell biology from the University of Southern California, Los Angeles. She has worked as a consultant for the biotech/pharma industry and worked with Dr. Harsha and ORDI in the past for about 2 years. Dr. Krishna currently resides in Hyderabad India and has a keen interest in the rare diseases space and would like to bring awareness about the various diseases, diagnoses and treatments that are available and those in the pipeline. She first began working in the rare disease space during her postdoctoral training and has worked on peroxisome biogenesis disorders under the guidance of Dr. Joe Hacia at USC.

Ms. Neeraja

Neeraja is in her junior year of high school, studying at a School in Gurgaon, India. She has completed all 8 grades in a set of vocal examinations conducted by Trinity College as the captain of the Student Council in her school, currently serving the post of House Captain. Neeraja aims to find solutions to the problems associated with the fields of healthcare, technology, and sustainable development. She is passionate about teenage welfare and has founded a youth-centric organization called ‘Discover Yourself’ through which she aims to inspire, and collaborate with young people across the world and wants to bring awareness regarding various teenage and adolescent issues

Search