Read More 0 Comment 142 Views Patient Stories Lena Jackson – Living with Limb Girdle muscular dystrophy March 24, 2022 By Hello, my name is Lena Jackson. I’m a mother of two children and a wife of 14 years. I’m also… Read More
Read More 0 Comment 248 Views Indian Diaspora with Rare Diseases, Patient Stories On a Mission to Find Treatment for Autism March 2, 2022 By I want to help others. But first, I need your help! My name is Ishaan Holloway. I’m a 16… Read More
Read More 1 Comment 309 Views Indian Diaspora with Rare Diseases, Patient Stories Rare Disease and Life Lessons February 25, 2022 By The whole point of living is to keep trying! This is my Mantra. I am a 26-year old research student… Read More