IndoUSrare
  • Search
  • Login
  • Menu Canvas
    • About Us
      • Financials
      • Meet The Team
      • Message from founder
      • Our History
      • Our Vision and Mission
      • Partners And Supporters
    • Programs
      • Advocacy at IndoUsrare
      • Patients Alliance
        • Program Information
        • Apply for Membership
        • Members list
      • Research Programs
        • IndoUsrare prevalence and Incidence study
        • IndoUSrare Research corps
        • RARE-X
      • ROAR4RARE
      • Webinar Series
    • Events
      • Events Calendar
      • Art4rare
      • Science4Rare
      • Rare Disease Day
      • Indo US Bridging RARE Summit
    • Contact Us
    • Resources
      • Blogs
      • IndoUSrare on social media
      • News/Media
      • Newsletter
    • Patients and Patient Families
      • Events
      • Patient Contact Form
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare on the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Patient Organizations
      • Events
      • My account
      • Patients alliance program
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare in the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Supporters
      • Corporate Alliance Program
      • Join our research corps
      • volunteer With Us
      • Donate
      • Events
  • About Us
    • Our Vision and Mission
    • Meet The Team
    • Message from Founder
    • Our History
    • Partners And Supporters
    • Financials
  • Programs
    • Advocacy
    • Corporate Alliance
    • Patient Concierge
    • Patients Alliance
      • Program Information
      • Apply for Membership
      • Members List
    • Research Programs
      • Prevalence and Incidence Study
      • Our Research Corps
      • RARE-X
      • Awareness
      • International Perceptions of Clinical Trial Participation
    • Webinar Series
  • Events
    • Events Calendar
    • Art4rare
    • Science4Rare
    • Rare Disease Day
    • Indo US Bridging RARE Summit
  • Resources
    • Blogs
    • News/Media
    • Our Newsletters
    • Social media
    • Financial Advocacy
  • Contact Us
  • Donate

    Help Our Cause

    $
    Select Payment Method
    Personal Info

    Donation Total: $20

  • Search
  • Login
    • Logout
IndoUSrare
  • Indo USOrganization for Rare Diseases
  • Patients and Patient Families
    • Events
    • Patient Contact Form
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Patient Organizations
    • Events
    • Login
    • Patients Alliance Program
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Supporters
    • Corporate Alliance Program
    • Join our Research Corps
    • Volunteer with Us
    • Donate
    • Events

Uncategorized

Homepage A Unique Girl in her Unique World
Would you like to share your story of living with a rare disease? Tell us here
Read More
0 Comment
28 Views
Uncategorized

A Unique Girl in her Unique World

March 13, 2023
By
Read More
Read More
0 Comment
47 Views
Uncategorized

Newborn Screening – The Indian Perspective

February 7, 2023
By

We are incredibly excited to present to you Newborn Screening – The Indian Perspective by Dr. A. Radha Rama Devi.…

Read More
Read More
0 Comment
140 Views
Uncategorized

In search of a correct diagnosis

November 8, 2022
By

In Search of the Right Diagnosis In 2008, one Sunday afternoon, in a city in Andhra Pradesh, Ravi, a three-year-old,…

Read More
Read More
0 Comment
317 Views
Patient or Personal Story, Uncategorized

Farber disease: A rare disease that hurts the young

August 13, 2022
By

The pain afflicted by the devastating Farber disease is experienced by the whole family When they first heard his slightly…

Read More
Read More
0 Comment
725 Views
Uncategorized

Why is it important to engage rare disease stakeholders in India with global clinical research?

September 1, 2021
By

With a mission to educate, empower, and advocate for patients with rare diseases in the US and India, the Indo-US…

Read More
Read More
0 Comment
547 Views
Uncategorized

Announcing IndoUSrare

June 15, 2021
By

Hi, I am Harsha Rajasimha, Founder and Chairman of IndoUSrare, an independent non-profit organization focused on helping patients with rare…

Read More
Read More
0 Comment
555 Views
Uncategorized

A social entrepreneur on a mission to bridge the clinical research divide between the U.S. & India

June 15, 2021
By

Even as the world awaits a vaccine to tackle the global pandemic instigated by the novel coronavirus, there are over…

Read More
Read More
0 Comment
558 Views
Uncategorized

Social entrepreneur on a mission to bridge the clinical research divide between the USA and India with advocacy and technology

June 14, 2021
By

Dr.Harsha Rajasimha is a rare disease social entrepreneur globally recognized for his work in genomics data science, persistent advocacy, and…

Read More
  • Patients and Families
  • Supporters
  • Patient Organizations
  • About Us
  • Programs
  • Events
  • Contact Us
  • Resources
Signup For Our Newsletter

Connect With Us

  • SITEMAP
  • WEBSITE CREDITS
  • PRIVACY
  • DISCLAIMER
Copyright ©2022 Indo US Organization for Rare Diseases. All rights reserved. IndoUSrare is a registered 501(c)(3) charity organization.
MS. KANAN LATHI

Kanan Lathia is an Ambassador and scientific consultant at Indousrare.She has spent 20+ years as a research scientist focusing on neurodegenerative diseases, cancer, and HIV. She has also worked as a project manager supporting teams in building brain maps of the first 1000 days of babies. Kanan’s passion for rare diseases is driven by a personal cause. Her work with Dup15q Alliance strengthened her passion for giving back to rare disease families. Kanan hopes to scale the organization’s efforts by securing funding and building a patient alliance membership program. Kanan loves yoga and spending time between the US and India.

 Dr. Krishna Ramaswamy

Dr. Krishna Ramaswamy is a life science professional with experience in research, management consulting, and business development in academia and industry. She has a Ph.D. in Biological Sciences from University at Buffalo, SUNY, and pursued postdoctoral research in cell biology from the University of Southern California, Los Angeles. She has worked as a consultant for the biotech/pharma industry and worked with Dr. Harsha and ORDI in the past for about 2 years. Dr. Krishna currently resides in Hyderabad India and has a keen interest in the rare diseases space and would like to bring awareness about the various diseases, diagnoses and treatments that are available and those in the pipeline. She first began working in the rare disease space during her postdoctoral training and has worked on peroxisome biogenesis disorders under the guidance of Dr. Joe Hacia at USC.

Ms. Neeraja

Neeraja is in her junior year of high school, studying at a School in Gurgaon, India. She has completed all 8 grades in a set of vocal examinations conducted by Trinity College as the captain of the Student Council in her school, currently serving the post of House Captain. Neeraja aims to find solutions to the problems associated with the fields of healthcare, technology, and sustainable development. She is passionate about teenage welfare and has founded a youth-centric organization called ‘Discover Yourself’ through which she aims to inspire, and collaborate with young people across the world and wants to bring awareness regarding various teenage and adolescent issues

Search