Read More 0 Comment 142 Views Patient Stories Lena Jackson – Living with Limb Girdle muscular dystrophy March 24, 2022 By Hello, my name is Lena Jackson. I’m a mother of two children and a wife of 14 years. I’m also… Read More
Read More 0 Comment 248 Views Indian Diaspora with Rare Diseases, Patient Stories On a Mission to Find Treatment for Autism March 2, 2022 By I want to help others. But first, I need your help! My name is Ishaan Holloway. I’m a 16… Read More
Read More 1 Comment 309 Views Indian Diaspora with Rare Diseases, Patient Stories Rare Disease and Life Lessons February 25, 2022 By The whole point of living is to keep trying! This is my Mantra. I am a 26-year old research student… Read More
Read More 0 Comment 515 Views Uncategorized Why is it important to engage rare disease stakeholders in India with global clinical research? September 1, 2021 By With a mission to educate, empower, and advocate for patients with rare diseases in the US and India, the Indo-US… Read More
Read More 0 Comment 363 Views Uncategorized Announcing IndoUSrare June 15, 2021 By Hi, I am Harsha Rajasimha, Founder and Chairman of IndoUSrare, an independent non-profit organization focused on helping patients with rare… Read More