In search of a correct diagnosis
In Search of the Right Diagnosis In 2008, one Sunday afternoon, in a city in Andhra Pradesh, Ravi, a three-year-old,…
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Farber disease: A rare disease that hurts the young
The pain afflicted by the devastating Farber disease is experienced by the whole family When they first heard his slightly…
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Lena Jackson – Living with Limb Girdle muscular dystrophy
Hello, my name is Lena Jackson. I’m a mother of two children and a wife of 14 years. I’m also…
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On a Mission to Find Treatment for Autism
I want to help others. But first, I need your help! My name is Ishaan Holloway. I’m a 16…
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Rare Disease and Life Lessons
The whole point of living is to keep trying! This is my Mantra. I am a 26-year old research student…
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Why is it important to engage rare disease stakeholders in India with global clinical research?
With a mission to educate, empower, and advocate for patients with rare diseases in the US and India, the Indo-US…
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Announcing IndoUSrare
Hi, I am Harsha Rajasimha, Founder and Chairman of IndoUSrare, an independent non-profit organization focused on helping patients with rare…
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