IndoUSrare
  • Search
  • Login
  • Menu Canvas
    • About Us
      • Financials
      • Meet The Team
      • Message from founder
      • Our History
      • Our Vision and Mission
      • Partners And Supporters
    • Programs
      • Advocacy at IndoUsrare
      • Patients Alliance
        • Program Information
        • Apply for Membership
        • Members list
      • Research Programs
        • IndoUsrare prevalence and Incidence study
        • IndoUSrare Research corps
        • RARE-X
      • ROAR4RARE
      • Webinar Series
    • Events
      • Events Calendar
    • Contact Us
    • Resources
      • Blogs
      • IndoUSrare on social media
      • News/Media
      • Newsletter
    • Patients and Patient Families
      • Events
      • Patient Contact Form
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare on the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Patient Organizations
      • Events
      • My account
      • Patients alliance program
      • Resources
        • Blogs
        • Connect on social media
        • IndoUSrare in the Media
        • Newsletter
        • Webinars
      • Testimonials
    • Supporters
      • Corporate Alliance Program
      • Join our research corps
      • volunteer With Us
      • Donate
      • Events
  • About Us
    • Our Vision and Mission
    • Meet The Team
    • Message from Founder
    • Our History
    • Partners And Supporters
    • Financials
  • Programs
    • Advocacy
    • Corporate Alliance
    • Patients Alliance
      • Program Information
      • Apply for Membership
      • Members List
    • Research Programs
      • Prevalence and Incidence Study
      • Our Research Corps
      • RARE-X
  • Events
    • Events Calendar
    • ART4RARE
    • Rare Disease Day
    • ROAR4RARE
    • Webinar Series
  • Resources
    • Blogs
    • News/Media
    • Our Newsletters
    • Social media
  • Contact Us
  • Donate

    Help Our Cause

    $
    Select Payment Method
    Personal Info

    Donation Total: $20

  • Search
  • Login
    • Logout
IndoUSrare
  • Indo USOrganization for Rare Diseases
  • Patients and Patient Families
    • Events
    • Patient Contact Form
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Patient Organizations
    • Events
    • Login
    • Patients Alliance Program
    • Resources
      • Blogs
      • Connect on Social Media
      • IndoUSrare in the Media
      • Newsletter
      • Webinars
    • Testimonials
  • Supporters
    • Corporate Alliance Program
    • Join our Research Corps
    • Volunteer with Us
    • Donate
    • Events

Homepage

    Girl in a jacket

    IndoUSrare Patient Contact Form

    Thank you for your interest in seeking information assistance from IndoUSrare. Please provide the following information to help us understand your current situation.

    Required*

    Full Name *

    Please enter your full name

    Your email address *

    An email address where we can contact you at. We will not share your contact info with anyone.

    Phone number

    Please enter your phone number with area code, if applicable. We will not share your contact info with anyone.

    Location *

    City / State where you live

    Your physician / hospital*

    Name of physician & hospital are you current seeking treatments for this disease. Include city/state of the hospital


    [cf7mls_step cf7mls_step-1 "next" ""]Girl in a jacket

    IndoUSrare Patient Contact Form

    Required*

    About the disease

    Tell us about the disease to help us understand patients better. Enter N/A if you don't know answers to any question.


    Mention the name of the gene involved, any other genetic/scientific details as much as you know


    How are patients generally diagnosed? How many months/years into life do they get the diagnosis? Any other information pertaining to diagnosis.

    How are patients treated for this disease today? Include allopathic medicines, aryurvedic medicines, home remedies, and other activities to manage symptoms commonly used by patients

    Describe any prospective treatments being developed for this disease. Include their development status, trials status, country where it is currently being developed etc

    [cf7mls_step cf7mls_step-2 "Back" "Next" "Step 2"]

    Girl in a jacket

    IndoUSrare Patient Contact Form

    Thank you for your interest in joining IndoUSrare as a member. Please complete this form to initiate membership


    Mention the name of the gene involved, any other genetic/scientific details as much as you know


    How are patients generally diagnosed? How many months/years into life do they get the diagnosis? Any other information pertaining to diagnosis.

    How are patients treated for this disease today? Include allopathic medicines, aryurvedic medicines, home remedies, and other activities to manage symptoms commonly used by patients

    Describe any prospective treatments being developed for this disease. Include their development status, trials status, country where it is currently being developed etc

    [cf7mls_step cf7mls_step-3 "Back" "Step 3"]

    • Patients and Families
    • Patient Organizations
    • Supporters
    • About Us
    • Programs
    • Events
    • Contact Us
    • Resources
    Signup For Our Newsletter

    Connect With Us

    • SITEMAP
    • WEBSITE CREDITS
    • PRIVACY
    • DISCLAIMER
    Copyright ©2022 Indo US Organization for Rare Diseases. All rights reserved. IndoUSrare is a registered 501(c)(3) charity organization.
    Search